RIP Susan Niebur aka @WhyMommy

February 6th, 2012

Four and a half years ago, I started this blog with a dedication to Susan Niebur, an incredibly inspiring, brave, brilliant, funny, compassionate woman whose many wonderful posts about life with kids in DC introduced me to the world of blogging. Sadly, over time, there were more posts about fighting Inflammatory Breast Cancer than about museum trips, but Susan retained the same joyful voice that endeared her first to Moms in the DC area, and later, to people around the world.

Susan passed away today.

In Susan’s memory, please consider a donation to The Inflammatory Breast Cancer Research Foundation.

RIP, Susan, a woman much loved.

— Lynn


Helping Those Who Need It Most

January 7th, 2011

I woke up early this morning to retrieve Big Boy from Children’s Hospital. We’re so fortunate. In and out world-class medical care just 30 minutes from our home.  At Children’s, they treat anybody – from the children of DC’s power brokers to the poorest kids in our nation’s capital.  As one of the doctors there said to me yesterday,

“We’re $50 Million in the hole this year. We can be doing fine financially, but then one bone marrow transplant for a patient without insurance will set us back. And can you really say no to a child with cancer?”

And while I give thanks for the incredible staff at Children’s National Medical Center, I also thought of others with cancer – adults. Do people say no to them?

According to my friend Susan from ToddlerPlanet, they do. Susan has world class medical care and  tons of resources at her disposal to fight her fourth recurrence of cancer in four years. She just found out about this latest round, and while she’s intent on beating this back, her focus is also on a very personal campaign: getting lymphedema sleeves onto the arms of cancer patients.

If you haven’t heard of lymphedema sleeves, you’re not alone. In fact, when I first met Susan at BlogHer this summer, I gasped and said, “You blog about everything! How come you never blogged that you have tattooed arms??!!”

Well, this brilliant astrophysicist does not have tattooed arms – but she does have lymphedema sleeves, which reduce the pain and swelling associated with cancer – while looking like radical fashion accessories.

Read more here.

— Lynn

If IBC is So Rare…

March 18th, 2008

If Inflammatory Breast Cancer (IBC) is so rare, why did I learn yesterday of yet another case of IBC? This time, it’s my former boss’s daughter-in-law.

If you don’t know what I’m talking about, stop what you are doing, bookmark this post to return to it, or read on. You could save the life of a woman you love.

IBC is the rarest and most aggressive form of breast cancer. It does not present with a lump. IBC may look like a rash, a bug bite, a bruise, or even mastitis. Bottom line: if a woman notices a change in her breast, she needs to contact her doctor right away to rule out IBC.

My very first post on OrganicMania was about IBC. You can read it here. I dedicated that post to two friends who are fighting IBC. And this post is dedicated to Adriana, with a million billion wishes for a full recovery.

To learn more about IBC, visit ToddlerPlanet – a wonderful blog about fighting IBC and raising kids. There you’ll find wonderful posts like this one about IBC (including links to IBC-specific cancer organizations) and this series of many posts about how to help a friend with cancer.

And pass this post on to the women you love. Now.

— Lynn